know it all too well
Hi Flori
I was on Tykerb/Xeloda for 1 year and I had severe hand/foot syndrom from the Xeloda (I am sure that the Tykerb did not help the matters )
The soles of my feet were extremely red and my hands turned dark. My toe nails looked terrible with oozing from under them and hollow areas (they never did fall off though) I had major cracking and peeling. I tried about every lotion I could but to no avail. Once I stopped the Xeloda, my feet and hands returned to normal.
I am on Xeloda again now with Ixempra and my feet are once again very sore (like walking on glass like you said) I went back to basics and now slather my feet at nite with good old fashioned VASELINE and put socks on and that seems to keep them from the severe cracking.
Good luck Flori - Xeloda is a great drug so I felt it was worth it. If you get worse, maybe your onc can lower the dosage. I had to and this time I am on a lower dosage so so far its been tolerable.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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