View Single Post
Old 04-04-2008, 10:15 AM   #5
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Tiptoe's HER2SUPPORT story.

For anyone who doesn't know the story of Tiptoe (this is the name on her tag from the maker), she is a Chinese hamster, from which Herceptin is derived.

We found out she was a Buddhist some time back, among other personality traits.

Here is the thread that started it all:
http://her2support.org/vbulletin/sho...hamster&page=3

You have to scroll down to post #43 to find where Pink Girl actually decides to order a "faux" Chinese hamster and pass it among the group here.
Some hilarious reading as the idea comes to fruition!

ANYONE WHO WOULD LIKE A VISIT IS WELCOME TO GET ON THE LIST. JUST SPEAK UP!

FYI - There are also Tiptoe threads under the Keeping Your Mind Off Cancer part of this site. Everyone who has hosted her has posted pics. And the visit schedule is there. They are booked till end of summer.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 04-04-2008 at 11:27 AM..
StephN is offline   Reply With Quote