HER2 Support Group Forums - View Single Post - ~A New England Get Together~Let's Do It!!

Believe51 · 03-17-2008, 03:58 PM

First of all I am really excited about this get together. So far some of the major requests seem to be weekends and we must arrange it so that there will be plenty of Maine lobsters and Ipswitch clams to bribe Joe & Christine with! LOL..hehehe!

Becky, I will keep you in mind especially because our last plans to meet never materialized and with patience I knew there would be another chance to steal a hug.

Kareneg, I wish this was a secret but I still have a Christmas gift here for you and the little one. Oww, that should be written under "Most Embarrassing Moments".....(smiling)

Joan M....I am touched that you would consider coming from New York to visit with us all. That goes for Joe & Christine also, truely moving! What touches me also is our 'shy ones' that are going to try to meet with us all. This makes my heart sing My Friends.....(in my mind only 'cause really I am tone-deaf)

Most of us seem to be very close to one another so this should run very smooth. There are also others that live in the area and just may have missed the post. This will all come together nicely and will be a chance to do this again because we are so close.

And Anna, Ed still works with Dana Farber in conjunction with one of the top Oncologists in Rhode Island. He is also allowing them to study him as a Male Breast Cancer patient w/Inflammatory BC. There appears to be only one other living man with IBC and he lives in Lebanon. Hope we can someday help others with any information we can supply.

Before I go my message center is full (yes...200 messages) and I will be aiming to clean it tomorrow. Please do not PM me until then, I would hate for you to write a PM that you cannot send. Or use my Yahoo e-mail, after this post I will update my address for you. I cannot wait.

Talk soon My Loves>>Believe51

03-17-2008, 03:58 PM	#15
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Just a couple of things... First of all I am really excited about this get together. So far some of the major requests seem to be weekends and we must arrange it so that there will be plenty of Maine lobsters and Ipswitch clams to bribe Joe & Christine with! LOL..hehehe! Becky, I will keep you in mind especially because our last plans to meet never materialized and with patience I knew there would be another chance to steal a hug. Kareneg, I wish this was a secret but I still have a Christmas gift here for you and the little one. Oww, that should be written under "Most Embarrassing Moments".....(smiling) Joan M....I am touched that you would consider coming from New York to visit with us all. That goes for Joe & Christine also, truely moving! What touches me also is our 'shy ones' that are going to try to meet with us all. This makes my heart sing My Friends.....(in my mind only 'cause really I am tone-deaf) Most of us seem to be very close to one another so this should run very smooth. There are also others that live in the area and just may have missed the post. This will all come together nicely and will be a chance to do this again because we are so close. And Anna, Ed still works with Dana Farber in conjunction with one of the top Oncologists in Rhode Island. He is also allowing them to study him as a Male Breast Cancer patient w/Inflammatory BC. There appears to be only one other living man with IBC and he lives in Lebanon. Hope we can someday help others with any information we can supply. Before I go my message center is full (yes...200 messages) and I will be aiming to clean it tomorrow. Please do not PM me until then, I would hate for you to write a PM that you cannot send. Or use my Yahoo e-mail, after this post I will update my address for you. I cannot wait. Talk soon My Loves>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!