View Single Post
Old 03-15-2008, 03:20 PM   #2
Andrea Barnett Budin
Senior Member
 
Andrea Barnett Budin's Avatar
 
Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink Hoping To Be Of Some Help...

Tamara, What tx were you on and what is the time frame? I have often noted that some believe the H is causing their issues, whereas the tx that has been completed has lingering side effects. Often I realize that it is the Taxotere, or whatever, that is no longer being received, that is responsible for what I hear described.

You can read my signature and see where I'm coming from. When I finished T the awful issues it created lasted for a very long time. So it may not be the H that is the culprit.

I developed major IBS as a result of T. It remains w/me but I now have it under control, though watching out for my *trigger* foods is necessary (and a learning process). The terrible weak, fatigued feeling lasted more than 6 mnths. The rash by the port could be coming from something as simple as the kind of adhesive the chemo nurse uses. I ask for a paper kind that helps that problem.

I am sending you loving, healing energy. I hope you will soon get on top of your problems. If I can be of further help, please don't hesitate to ask. You can PM me if you want. Or post.

You've been through a lot I am sure. Please try to stay strong. And I pray you will soon feel relief from your physical ailments, Tamara!
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Andrea Barnett Budin is offline   Reply With Quote