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AlaskaAngel · 03-14-2008, 08:41 PM

Thanks, Barbara! I wonder when this list was made.

I had an experience that I wonder about in regard to the BBB. Just after my 2nd or 3rd dose of CAF, I was sitting at the computer and felt a fluid wave move from the base of the neck up through and over the head, and for about 3 full minutes I was entirely blind. I had my eyes wide open, trying to look at the computer screen, but all I was seeing was nothing. It never happened again during the remaining CAF treatments. It was very difficult for me to go ahead with treatment because no one could explain it. I asked my providers about it and no one had any explanation for it. I will always wonder if the blindness was due to something crossing the BBB. I can see from the list that C and F do cross and A does not, and I wonder what caused the blindness. I wonder if there is a difference in my brain tissue compared to others because of that experience, and if there is any difference among patients as to which drugs cross the BBB.

AlaskaAngel

03-14-2008, 08:41 PM	#2
AlaskaAngel Senior Member Join Date: Sep 2005 Location: Alaska Posts: 2,018	Bbb Thanks, Barbara! I wonder when this list was made. I had an experience that I wonder about in regard to the BBB. Just after my 2nd or 3rd dose of CAF, I was sitting at the computer and felt a fluid wave move from the base of the neck up through and over the head, and for about 3 full minutes I was entirely blind. I had my eyes wide open, trying to look at the computer screen, but all I was seeing was nothing. It never happened again during the remaining CAF treatments. It was very difficult for me to go ahead with treatment because no one could explain it. I asked my providers about it and no one had any explanation for it. I will always wonder if the blindness was due to something crossing the BBB. I can see from the list that C and F do cross and A does not, and I wonder what caused the blindness. I wonder if there is a difference in my brain tissue compared to others because of that experience, and if there is any difference among patients as to which drugs cross the BBB. AlaskaAngel