HER2 Support Group Forums - View Single Post - ~Mighty Oaks Petscan Saturday~Prayer Requests

Believe51 · 03-13-2008, 01:47 PM

This Saturday Ed will be going for another petscan to check his progress with this new combo of A/C he has been on for 4 months. His tumor markers keep declining steadily towards normal and just a reminder that he is a very tumor marker sensitive person. Tomorrow will mark his 7th treatment of chemo w/5 left if he can tolerate it and boy is he getting tired (almost 18 mths of straight treatment).

This is a scary time for us because last time he was almost there before and the cancer grabbed the upper hand. I am very scared about this part of the journey. Hearing good news will be the other half of the miracle we been searching and begging for. I am afraid that with having Inflammatory BC and all this treatment that the cancer will remain with that upper hand!

I am also concerned with the fact that Ed failed on Herceptin AND Tykerb, how will we manage his Inflammatory BC after?? Guess I am just ranting, neither here nor there. Just scared is all!

And without sounding negative just facing our realities, he may never get better. As much as this hurts to think and say it is reality. He is having a real tough time getting well.

Wish us luck friends because we are not giving up. We are still demanding our miracle. And we are here to say "Watch out cancer because as PinkGirl said....The Mighty Oak is yesterday's nut that stood its ground!!"

03-13-2008, 01:47 PM	#1
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	~Mighty Oaks Petscan Saturday~Prayer Requests This Saturday Ed will be going for another petscan to check his progress with this new combo of A/C he has been on for 4 months. His tumor markers keep declining steadily towards normal and just a reminder that he is a very tumor marker sensitive person. Tomorrow will mark his 7th treatment of chemo w/5 left if he can tolerate it and boy is he getting tired (almost 18 mths of straight treatment). This is a scary time for us because last time he was almost there before and the cancer grabbed the upper hand. I am very scared about this part of the journey. Hearing good news will be the other half of the miracle we been searching and begging for. I am afraid that with having Inflammatory BC and all this treatment that the cancer will remain with that upper hand! I am also concerned with the fact that Ed failed on Herceptin AND Tykerb, how will we manage his Inflammatory BC after?? Guess I am just ranting, neither here nor there. Just scared is all! And without sounding negative just facing our realities, he may never get better. As much as this hurts to think and say it is reality. He is having a real tough time getting well. Wish us luck friends because we are not giving up. We are still demanding our miracle. And we are here to say "Watch out cancer because as PinkGirl said....The Mighty Oak is yesterday's nut that stood its ground!!" __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!