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Joan M · 02-25-2008, 06:26 PM

Alice,

Try not to worry about the scan. Perhaps you're feeling light-headed for other reasons.

Your oncologist just wants to rule out any problems, and it's good that she's responding to your symptoms. Although many oncologist are reluctant to give follow-up tests, you'd be surprised how they can spring into action when a patient is having symptoms.

I had a brain MRI in an open MRI. I had a brace over my face, but it wasn't tight, meaning that if I wanted to slip out of it, I could.

Find out if the radiology facility has an open MRI. If not and you think it would be more comfortable to be in an open machine, check around in your area for a facility that has one, or ask your oncologist.

Joan

02-25-2008, 06:26 PM	#3
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Alice, Try not to worry about the scan. Perhaps you're feeling light-headed for other reasons. Your oncologist just wants to rule out any problems, and it's good that she's responding to your symptoms. Although many oncologist are reluctant to give follow-up tests, you'd be surprised how they can spring into action when a patient is having symptoms. I had a brain MRI in an open MRI. I had a brace over my face, but it wasn't tight, meaning that if I wanted to slip out of it, I could. Find out if the radiology facility has an open MRI. If not and you think it would be more comfortable to be in an open machine, check around in your area for a facility that has one, or ask your oncologist. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!