HER2 Support Group Forums - View Single Post - ~MY Eye Issues~not cancer-related

Believe51 · 02-06-2008, 01:11 PM

I thought I would post here to get the most responses from you all. I have been trying to keep up with you and your journies, but my responses have been limited. Here goes:

I just found out that I was born with cataracts no one ever found...Uggh. Living with them since birth, how do you know what good vision is?? I have always loved my eyes, they are my favorite trait besides my smile. Does not end here, I have glaucoma also. The new doctor said that if it was not for my excellant optic nerves I would have probally lost sight by now; mentioned that they were the best he ever seen. As for the cataracts, most generic cataracts are corrected with surgery by 25-30 years old, I am 42, 43 in June....okay, now you know ALL my secrets...haha! Luckily these nerves have helped me to survive, I have adapted.

You know I try to push negative thoughts away and succeed in pushing away the what-if's. This is hard for me to do right now with this new twist to the story I call my life. All I can think of is how am I going to take care of my sick husband and Mother? My disabled father, watching my granddaughter grow....But the worst thing is: How would I be able to go on without the support from my family here. Thoughts are racing and I know some of my dear friends are rather ill, I do not mean to sound selfish. I am such a sensory person and just the thought of losing my sight makes me feel like I will really lose it on this journey.

I am sorry for ranting but it is the first time in ions that I cannot turn off the brain. I started with getting glasses for reading and will transition to full time glasses, then surgery. Thanks, I have tried to help myself without bothering you all but thoughts of losing you due to going blind is weighing heavy on my mind. Now I have to go, can't see through all of these tears and did not want this post to be too long (too late blabber-mouth). Lots of Love>>Believe51

PS: It is however, different to be worrying about me for a change. And NO, my migraines are not from the eyes, not the same headache (had migraines since age 8).

02-06-2008, 01:11 PM	#1
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	~MY Eye Issues~not cancer-related I thought I would post here to get the most responses from you all. I have been trying to keep up with you and your journies, but my responses have been limited. Here goes: I just found out that I was born with cataracts no one ever found...Uggh. Living with them since birth, how do you know what good vision is?? I have always loved my eyes, they are my favorite trait besides my smile. Does not end here, I have glaucoma also. The new doctor said that if it was not for my excellant optic nerves I would have probally lost sight by now; mentioned that they were the best he ever seen. As for the cataracts, most generic cataracts are corrected with surgery by 25-30 years old, I am 42, 43 in June....okay, now you know ALL my secrets...haha! Luckily these nerves have helped me to survive, I have adapted. You know I try to push negative thoughts away and succeed in pushing away the what-if's. This is hard for me to do right now with this new twist to the story I call my life. All I can think of is how am I going to take care of my sick husband and Mother? My disabled father, watching my granddaughter grow....But the worst thing is: How would I be able to go on without the support from my family here. Thoughts are racing and I know some of my dear friends are rather ill, I do not mean to sound selfish. I am such a sensory person and just the thought of losing my sight makes me feel like I will really lose it on this journey. I am sorry for ranting but it is the first time in ions that I cannot turn off the brain. I started with getting glasses for reading and will transition to full time glasses, then surgery. Thanks, I have tried to help myself without bothering you all but thoughts of losing you due to going blind is weighing heavy on my mind. Now I have to go, can't see through all of these tears and did not want this post to be too long (too late blabber-mouth). Lots of Love>>Believe51 PS: It is however, different to be worrying about me for a change. And NO, my migraines are not from the eyes, not the same headache (had migraines since age 8). __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!