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StephN · 02-05-2008, 12:54 PM

Hi Paris -
Looks like from your sig that you got about 1/2 a year of Herceptin. I am stage IV so am on it permanently or until it fails me.

I did take a 3 month Herceptin Holiday beginning of 2007, just because I wanted it. I understand there is a long half life and it takes a couple of months to clear our system. I think you are still getting some benefit.

You can search this site and find a number of women have had to either take a break or stop their Herceptin due to heart problems. Often times the heart will repair itself with either time or time and some special meds. Then the patient was able to resume.

You can always get a new loading dose any time your docs say it is OK to go back on Herceptin. I don't think it is ever too late.

02-05-2008, 12:54 PM	#2
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Hi Paris - Looks like from your sig that you got about 1/2 a year of Herceptin. I am stage IV so am on it permanently or until it fails me. I did take a 3 month Herceptin Holiday beginning of 2007, just because I wanted it. I understand there is a long half life and it takes a couple of months to clear our system. I think you are still getting some benefit. You can search this site and find a number of women have had to either take a break or stop their Herceptin due to heart problems. Often times the heart will repair itself with either time or time and some special meds. Then the patient was able to resume. You can always get a new loading dose any time your docs say it is OK to go back on Herceptin. I don't think it is ever too late. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.