HER2 Support Group Forums - View Single Post

Andrea Barnett Budin · 01-10-2008, 10:00 PM

Kate, my touseled friend --- what about the Patients Bill of Rights? You are entitled to all your reports upon request.

I get Ct scans reports mailed to me and received in 2 days. Other offices will fax them right to me, in minutes. They are your reports. You have every right to them.

I have had a string of NP that are useless, a great source of misinformation, lacking compassion, and plain rude. I had 1 other such person in an outpatient surg clinic but not a one since '95. Now I'm embroiled in a string of one after another. Useless, snippy, cavalier (like we're discussin my tires...). They may be efficient, from the doc's point of view, but they lack humanity from mine.

You should be able to get your hands on the info you want tmrrw! I am alw nice, ladylike, but firm. No need to be rude, or demanding or threatening. But I want what I want (and am entitled to) when I want it, thank you very much... I'm a 12 yr professional patient. Don't mess with me little girl...

Andi

01-10-2008, 10:00 PM	#33
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Get What You're Legally Entitled To! Kate, my touseled friend --- what about the Patients Bill of Rights? You are entitled to all your reports upon request. I get Ct scans reports mailed to me and received in 2 days. Other offices will fax them right to me, in minutes. They are your reports. You have every right to them. I have had a string of NP that are useless, a great source of misinformation, lacking compassion, and plain rude. I had 1 other such person in an outpatient surg clinic but not a one since '95. Now I'm embroiled in a string of one after another. Useless, snippy, cavalier (like we're discussin my tires...). They may be efficient, from the doc's point of view, but they lack humanity from mine. You should be able to get your hands on the info you want tmrrw! I am alw nice, ladylike, but firm. No need to be rude, or demanding or threatening. But I want what I want (and am entitled to) when I want it, thank you very much... I'm a 12 yr professional patient. Don't mess with me little girl... Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...