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Old 01-10-2008, 07:46 PM   #29
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
I went for my Herceptin treatment today and saw the nurse practioner. In my opnion she's about as much help as a fifth wheel on a wagon. Can't answer any questions you pose, etc. I got another shot of Arixtra today and will continue to do so for a week to 10 days and then it's on to coumidin. I do have another scan scheduled for tomorrow to specificially look at the embolism. I tried to get the complete results of my scan from the NP but she would not give them to me. I see my pulmonary doctor on Monday so hopefully he'll be able to give me more information. I'm soooo mad that I didn't see my oncologist today. I will see her next Thursday and I will have my list of questions.

I did have a clot way back when I had my first port inserted and that was treated with Lovenox shots and then coumidin until 10 days before my surgery. I haven't had any problems since until now.

I did fly to PA over the Christmas holiday and am wondering if that may have contributed to the embolism. But I guess it doesn't do any good to think what if, etc. I just have to accept this is what is and go on from here.

I'm just hoping that when I see the oncologist next Thursday I will get the full report of my scans - brain, chest, abdomen. I want to know if the lung mets have grown, are stable or somehow disappeared. For now we will just get our dialy shots and work on my list of questions for the oncologist next week.

Thank you all for your concern and prayers. Thisis like taking one step forward and two steps back. But, not to worry soon we'll be taking two steps forward and none back.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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