HER2 Support Group Forums - View Single Post - Chime in please! Has herceptin (or tykerb)affected your eyebrows/lashes,fingers/toes/

Becky · 01-10-2008, 06:45 PM

I started Herceptin 4 months after my last Taxol (4 DD AC then 4 DD Taxol). Started Arimidex 3 months after Herceptin. I did not notice much except a runny nose until after Arimidex was started. Then my finger and toe nails began to thin and split. My toes did not recover as nicely but I began running again and have "runner's toes" BUT I did not get the cracked toenails (where you lose half the nail) and black toenails prior to cancer. However, I still have a bit of neuropathy left in my toes from Taxol and I think I don't feel as much as I should (and have since purchased new running shoes with a wider toe bed). I attributed the thin nails to Arimidex (or perhaps the combo) as my fingernails are still thinner than before cancer but not as thin as on the combo (but I am also almost 4 yrs older now and had ooph to be fully thrown into menopause).

01-10-2008, 06:45 PM	#6
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	I started Herceptin 4 months after my last Taxol (4 DD AC then 4 DD Taxol). Started Arimidex 3 months after Herceptin. I did not notice much except a runny nose until after Arimidex was started. Then my finger and toe nails began to thin and split. My toes did not recover as nicely but I began running again and have "runner's toes" BUT I did not get the cracked toenails (where you lose half the nail) and black toenails prior to cancer. However, I still have a bit of neuropathy left in my toes from Taxol and I think I don't feel as much as I should (and have since purchased new running shoes with a wider toe bed). I attributed the thin nails to Arimidex (or perhaps the combo) as my fingernails are still thinner than before cancer but not as thin as on the combo (but I am also almost 4 yrs older now and had ooph to be fully thrown into menopause). __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"