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Old 01-03-2008, 12:27 PM   #1
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Arrow ~Mighty Oak~A Little Inspiration For All....

Besides the holidays and Mom's new diagnosis, we have been rather busy here in Rhode Island. Ed is tolerating the A/C treatment well, we started out with a few to see how he would handle them. He is scheduled for atleast 6-8 treatments, 9 max (standard is 4 depending on body mass). HE IS BACK WITH US and boy did I miss him so!! One night I looked up at him and said, "Welcome back Love, I missed you so. Thanks for the great fight and lessons about courage and BELIEF; Thank you for being everything I ever wanted from a husband and then some!!" The holidays brought us normalcy as far as listening to music and he started drawing again, we went for rides to check out Christmas lights, he even was able to prepare the shrimp for our Christmas dinner. Sounds simple but all of these little things are the reasons for that fight! I almost feel as good as I did BEFORE breast cancer tried to claim our lives!! I am floating on a cloud of hope and inspiration....and I am not even afraid of heights anymore. Like I have mentioned before, since breast cancer not many things do I fear!!

The recent Mugascan was at 75%...YES! Atleast we know that this treatment is working and we can continue to take it. It means we have bought some time. Speaking of which, as we sat by the tree and celebrated the holiday and memories past he asked "Where does the time go??" I promised God that if we got more time I would remember every second!! (smiling outloud)

On the 7th he has another brain MRI to show his continued progress, how is that for positive thinking?? Although the Tykerb had little to do with his last miraculous results, I am anxiously awaiting these new results. Hopefully he will not need to do the gamma or cyber knife procedures, please keep us in your ongoing prayers, we need all of them and then more!!

Tumor markers have been rising since March 2007 and are finally dropping. We have a long way to go before we add a 'N' in front of Ed (NED) but we can go on with revitalized hope. This poor man has fought this horrific Inflammatory Breast Cancer journey without one day of remission so far. Please God, Please give him some remission, not just for me...for him. Please reward him some time for this fight, give him the answer to the reason he is fighting. I beg!

He does NOT have prostate cancer too!! Worst thing is we have discovered some Blastic Lesions, which are bad enough. Lytic lesions are 'bites from the bone', Blastic Lesions are holes right through the bones, usually from other cancers one being prostate. We thought he had prostate cancer for a while because his PSA (prostate tumor marker) was elevated most of this journey.

So My Dears, I needed to take the time to rejoice with the people who can really appreciate it. For the Newbies I hope this has instilled some hope for your journey too. Keep fighting the good fight!! I love you all so much and could never do this without this site and my extended family here, you are the greatest gifts>>Believe51

PS: Have not got a chance to answer some posts but I am so happy for the good news being shared, busy members popping in....San Antonio information...etc....Lani has me very engaged in reading articles, Ed is happy with my silence..Tehehe!! Thanks again Lani!

and for those who are having difficulty....you are in our continued prayers today and always. I've got you covered in the prayers department even if I have not responded to your outcries!! (Just in case I missed one or two)
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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