HER2 Support Group Forums - View Single Post - patient centered her2+ breast cancer research--PLEASE VOLUNTEER to donate your tumor

Lani · 12-21-2007, 05:37 PM

is already involved in a service (?don't whether whether for profit or not-for-profit) which helps researchers find tissue specimens to work on

Seeing how Washington University took their right to hold onto the prostate cancer samples donated to Dr. Catalona's research when he decided to move to Northwester (not sure of the chicken vs egg of this) all the way to the Supreme Court, I am somewhat in doubt as to whether this would be an institution in the running at all. Unsure of his motivations, but here is his answer:

Good afternoon,
Sorry it took so long to get back to you. Of course, everyone wants
everything before the holiday.

As far as a Her2+ registry...
Most investigators want to compare the results on Her2+ and Her2-
When using the same biomarker, reagent, protein, etc.

When investigators request our tissue microarrays we give them the ER,
PR, and Her2 status on each case. When investigators request full
tissue sections, we cut another section for them to run the Her2 test
(if they desire this result).

So at this point, I would suggest donating the tissue to a resource so
they can use it. Of course, keep a block for yourself (well for your
doctors).

Creating a tissue resource requires a lot of time, money, government
approvals, IRB approvals, training, etc. Most resources take years
before they are actually up and running and can help investigators.

Hope this helps.

12-21-2007, 05:37 PM	#33
Lani Senior Member Join Date: Mar 2006 Posts: 4,778	finally got a reply from the gentleman from Washington University who is already involved in a service (?don't whether whether for profit or not-for-profit) which helps researchers find tissue specimens to work on Seeing how Washington University took their right to hold onto the prostate cancer samples donated to Dr. Catalona's research when he decided to move to Northwester (not sure of the chicken vs egg of this) all the way to the Supreme Court, I am somewhat in doubt as to whether this would be an institution in the running at all. Unsure of his motivations, but here is his answer: Good afternoon, Sorry it took so long to get back to you. Of course, everyone wants everything before the holiday. As far as a Her2+ registry... Most investigators want to compare the results on Her2+ and Her2- When using the same biomarker, reagent, protein, etc. When investigators request our tissue microarrays we give them the ER, PR, and Her2 status on each case. When investigators request full tissue sections, we cut another section for them to run the Her2 test (if they desire this result). So at this point, I would suggest donating the tissue to a resource so they can use it. Of course, keep a block for yourself (well for your doctors). Creating a tissue resource requires a lot of time, money, government approvals, IRB approvals, training, etc. Most resources take years before they are actually up and running and can help investigators. Hope this helps.