HER2 Support Group Forums - View Single Post - patient centered her2+ breast cancer research--PLEASE VOLUNTEER to donate your tumor

Lolly · 12-18-2007, 11:04 PM

I would be willing to donate samples of my original tumor, ER/PR-, HER2+++. I haven't yet requested them from the facility storing them, but as soon as the holidays are over will start that process.
As far as actual leg work, I'm not physically able to offer any at this time, but if my new regimen is effective that may change.
Anyway, count me in for the tumor registry. I know UW/Seattle took many blood samples in the course of my participation in the vaccine trial, but I believe they can't share those.
But, as someone else pointed out, one of the samples they needed was drawn at my onc's office during the course of a regular blood draw, after UW had sent the "kit" to ship it back.

Count me in.

<3 Lolly

12-18-2007, 11:04 PM	#22
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	I would be willing to donate samples of my original tumor, ER/PR-, HER2+++. I haven't yet requested them from the facility storing them, but as soon as the holidays are over will start that process. As far as actual leg work, I'm not physically able to offer any at this time, but if my new regimen is effective that may change. Anyway, count me in for the tumor registry. I know UW/Seattle took many blood samples in the course of my participation in the vaccine trial, but I believe they can't share those. But, as someone else pointed out, one of the samples they needed was drawn at my onc's office during the course of a regular blood draw, after UW had sent the "kit" to ship it back. Count me in. <3 Lolly __________________ Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation. Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.