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Old 11-26-2007, 07:57 PM   #19
Joan M
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Join Date: Oct 2007
Posts: 1,851
I received a lot of pink ribbons, t-shirts, etc. when I was first diagnosed with early stage bc.

I appreciated them because they were given with love and concern.

Now, I get them occasionally. For example, just before I was diagnosed with stage IV bc last year, one of my sisters-in-law gave me and several other relatives and family friends a "breast cancer," limited edition, Better Homes and Gardens cookbook as a Christmas present, which I thought was really nice, and I was looking for new recipes anyway.

I belong to a bc support group where I receive treatment. The group meets once a month except in the summer. We have guest speakers from the pharmaceutical companies and they bring lots of pink stuff. But, unfortunately, most of it sports their logos.

The group is like the board here. We exchange a lot of information and offer each other support. I've also become good friends with a few of the members.

As for wearing pink, I do it occasionally except in October when I make a point to wear my bc ribbons and braclets. I look good in pink. And the color pink doesn't mean anything psychological to me. I shoot from the hip regardless, and feel just as comfortable in pink sweater as in my black leather motorcycle jacket.
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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