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Old 11-25-2007, 06:53 PM   #5
Joannie
Senior Member
 
Join Date: Oct 2005
Location: Beavercreek, Ohio
Posts: 67
Michelle:
I'm on the TEACH trial since May. I believe that I got the real thing vs placebo. I too had diarrhea, but it has since subsided. Most of the side affects that I had in the beginning, have tapered off. Have you tried any anti-diarrhea meds? I know that for me, the Tykerb feels somewhat like a safety net. I never received herceptin and that has always upset me as it has been so effective for so many ladies. If the drug is affecting your quality of life day to day, going off is something to think about. I wondered in the beginning if it was worth all what I was going through. Even though the side affects were nothing like standard chemo, I felt like I was tied to the toilet on many days! I will pray for you and hope that you will know what is best for your situation. It seems that our decision making never ends. I'm thankful everyday for this website and the support that it provides to me and so many other women.
__________________
Joannie

Diagnosed April 2003
3.3 cm tumor left breast
HER2 positive 3++
ER/PR negative
Masectomy April 2003
4 Rounds of AC - dose dense
4 Rounds of Taxol - dose dense
Removed right breast prophalactically
Full reconstruction with implants/nipples
No Late Herceptin Received
Started Tykerb TEACH Trial in May 2007
Completed Tykerb TEACH Trial in May 2008
5 year NED August 27, 2008!!!
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