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Old 11-25-2007, 06:34 PM   #25
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink Some Ideas That May Be Helpful. I Can Only Hope!

A THOUGHT ABOUT HOSPITAL STAYS... Hope someone picks this up for Kate. When my husband was in the hospital this past summer he could not wait to come home because the noise in the halls, cming from other patients screaming, nurses, rolling whatevers was making him crazy. He could not sleep.

So, I made a mental note -- BRING A GOOD HEADSET, PREFERABLY W/MUSIC, BUT EVEN BLOCKING OUT THE NOISE -- TO REST EASY...

You must get your sleep, Kate. It is healing.

I know someone is incessantly pestering you to take your bld pressure, temperature, collect urine, poke and prod. At least if you can create your own peaceful environment w/a headset -- you are better able to sleep and rest comfortably!

Just a suggestion I wish I'd thought of before Paul came home, and while he was fighting to get out of the hospital. He is an impossible patient. I know you, Kate, are the perfect patient, but we all need some guidance here.

Before my mastec, a friend suggested I bring my own pillow. I did and it was a comfort, w/my leopard print pillowcase. Another something to make the best of a necessary part of getting better.

With love,

Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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