HER2 Support Group Forums - View Single Post

micheleu · 11-25-2007, 05:45 PM

I want all of your opinions....a brief history for those that don't know my story..dx 2003 with stage 3b 35pos nodes Her2pos er/pr neg. Did Herceptin for ayear and a breast cancer vaccine in seattle. I'm 4 years out now. I talked by onc into giving me Tykerb off label this year. I fought my insurance company and won. I've been on it for about 3-4 months. I only take it during the week and give myself a break on the weekends due to diarrhea. Lately i've been having alot of stomach pains and diarrhea with it. I'm going for a ultrasound this week due to pelvic pain. I think it's the Tykerb. Well, my dilema is that part of me wants to stop it and part of me is scared to. I just don't want to stop it not really thinking about because if i recurr, then i will kick myself. My family wants me to stop it. I feel so much better off it. What are your thoughts????

11-25-2007, 05:45 PM	#1
micheleu Senior Member Join Date: Sep 2006 Location: Nebraska Posts: 154	Thinking of stopping Tykerb I want all of your opinions....a brief history for those that don't know my story..dx 2003 with stage 3b 35pos nodes Her2pos er/pr neg. Did Herceptin for ayear and a breast cancer vaccine in seattle. I'm 4 years out now. I talked by onc into giving me Tykerb off label this year. I fought my insurance company and won. I've been on it for about 3-4 months. I only take it during the week and give myself a break on the weekends due to diarrhea. Lately i've been having alot of stomach pains and diarrhea with it. I'm going for a ultrasound this week due to pelvic pain. I think it's the Tykerb. Well, my dilema is that part of me wants to stop it and part of me is scared to. I just don't want to stop it not really thinking about because if i recurr, then i will kick myself. My family wants me to stop it. I feel so much better off it. What are your thoughts????