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Old 11-24-2007, 07:02 PM   #3
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Melanie
I am in awe of all you are doing...I worked when I was first diagnosed, didn't know life without the work...I decided to have reconstruction 1 1/2 years later, then ended up with mets...with mets came Herceptin (this was before Herceptin was given as protocol), which meant a trip to Chicago (170 miles R/T) every 3 weeks for Herceptin....and tests, and Dr. appt.'s.....my job was traveling as a nurse, I worked for a large construction company and worked mostly nuclear plants all over the country....I would only get home once a month. I had to make a decision on whether to stick with 1 oncologist, or play traveling oncologist, which made no sense to me...I felt like I was chosing between my life and my job. I chose my life! As stage IV, the company disability insurance mandated that I apply for Social Security Disability, so I di, and I was awarded it. I miss my job, I loved what I did, but I wouldn't trade my life now for anything....I say if you feel like working and it isn't too hard on you, go for it. My job entailed working 13 hour days 6 days a week...I know from the past 6 mos of Taxol, Avastin and Herceptin, I couldn't do it anymore....I get tired easily most of the time! Where do you go for treatments? I go to Rush as does Donna D on this site. Good luck with whatever you choose to do, and welcome to our group!
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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