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Old 11-20-2007, 12:32 PM   #1
Joanne S
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Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
Question Follow-up diagnostic tests for potential mets???

I am very thankfull and pray for my cyber-HER2-Family.

I had my last Herceptin (1 year) yesterday. (Yeah!---but some mixed feelings, you know. )

I spoke with my oncologist who informed me that she does not do any follow-up diagnostic tests such as CT Scan, MRI, etc. to check for possible recurrence once chemo treatment is completed---only follow-up office visits with her.

As you probably already know, I am stage III with 6 of 16 positive lymph nodes. Oncologist explained that if I get symptoms in the future; she would then prescribe diagnostic tests to check for for possibility of recurrence.

I absolutely love my oncologist and had no concerns up to this point. I don't agree with her follow-up method. I feel I should be able to get diagnostic follow-up tests at least once or twice a year. She believes that it doesn't make any difference if the mets is found early or later with obvious symptons. I don't agree. I believe if it is caught earlier, treatment can be given to potentionially stop further cancer spread.

I did manage to talk her into giving me a prescription this one time for a CT Scan (chest, abdomen and pelvis) and MRI (brain and neck---I have a pinched nerve in my neck). I plan to schedule these in January.

How does this method of follow-up compare with your experience after finishing Herceptin?

Thanks for you input
Happy Thanksgiving !
Jo
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__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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