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Old 11-18-2007, 07:24 PM   #3
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Christina, I did TCH and about half way through chemo I started getting really bad swollen ankles, feet and the lower part of my legs. Super bad edema! I was concerned about heart problems from the herceptin even though my echo's were great. When my pulmonary doctor saw my ankles he had me run over to the hospital stat to see if I had clots. (That's how bad they were.) I had no clots and was put on lasix temporarily until I got through chemo. It was about 2 months after I finished chemo the swelling finally went away. Even when I was just doing the herceptin it was 100% better. I had minor swelling in ankles with herceptin...but not as bad as when I was doing the taxotere and carbpotin. So hang in there...I have a feeling it will pass when your done with your chemo. Of course keep an eye on it though and let your oncologist know.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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