HER2 Support Group Forums - View Single Post - Anyone else can't get QUININE for leg cramps??

StephN · 11-18-2007, 02:06 PM

Thanks, ladies and Paul, for your various thoughts and suggestions. I had my massage yesterday and felt worlds better afterwards, had lots of knots here and there from all the stress and tension I have been under with my dad's passing. Had not seeen my massage therapist since mid-August!

My local supplements store is just across from where I get my massages so stopped in and took a look. Came out with a formulation of magnesium and potassium - 600mg of mag. Took one with dinner.

The good news - I got through the night without a SINGLE cramp in leg, ankle, foot or sometimes all three areas. Guess I will continue with the magnesium pill in the evening.

My problem stems from having taken Taxotere and then 6 months after that taking 27 weekly treatments of Taxol/Navelbine/Herceptin for mets. All those taxanes killed my deep tendon reflexes.

How many of you on multiple treatments have had any of your docs take the rubber hammer to your reflexes? Mine show very little response and that has been the case since the last few of the Taxol group. My nerves do "fire" and my balance improved over time (was a bit rocky during all that chemo - had to install grab bars in shower etc.).

11-18-2007, 02:06 PM	#13
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Last night Thanks, ladies and Paul, for your various thoughts and suggestions. I had my massage yesterday and felt worlds better afterwards, had lots of knots here and there from all the stress and tension I have been under with my dad's passing. Had not seeen my massage therapist since mid-August! My local supplements store is just across from where I get my massages so stopped in and took a look. Came out with a formulation of magnesium and potassium - 600mg of mag. Took one with dinner. The good news - I got through the night without a SINGLE cramp in leg, ankle, foot or sometimes all three areas. Guess I will continue with the magnesium pill in the evening. My problem stems from having taken Taxotere and then 6 months after that taking 27 weekly treatments of Taxol/Navelbine/Herceptin for mets. All those taxanes killed my deep tendon reflexes. How many of you on multiple treatments have had any of your docs take the rubber hammer to your reflexes? Mine show very little response and that has been the case since the last few of the Taxol group. My nerves do "fire" and my balance improved over time (was a bit rocky during all that chemo - had to install grab bars in shower etc.). __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.