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Am I stage 3c or 4
This is a silly thing to worry about really and I do know this!! I have always told myself and others that I am stage 3c (because of tumor to supraclavicular node). However my onc and always said....very kindly and softly....that I have metatastic disease. During my last visit he told me that he had presented my case to his group at the hospital because he was debating putting me back on herceptin. My tumor markers were raising....serum her2....CT's were clear (no PET scans in Ontario) but he worried because of my heart. Apparently the expert said that I should be on herceptin and not to forget I was metatastic. Later.....when I got home I suddenly thought....my god....I'm not stage 3c...I'm 4....that's what they mean. Now....I'm ok and feeling a little foolish actually. I'm alive so who cares....but I feel like I need to know and perhaps now I'm ready to know...three years out.....am I 3c or 4?
Bless you all,
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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