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Old 11-16-2007, 10:19 AM   #8
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Talking A bit...

Ed seems to be maintaining although he has the 'fluttering' sensations in his belly. He has said that his stomach feels different than it did with the other two treatments. Atleast he is eating!! I feel terrible because he has always been this picture of health, he is not used to being sick. Also he had always ate healthy, putting others to shame with their diets (ahhhh, me LOL!!) and right now he eats just about anything he feels up to eating, homemade mac & cheese, things that are not-so-healthy but HE MUST GET FATTER!! Through this journey he has lost over 50 pounds!! YIKES!! Our concern for now is eat anything and MAINTAIN weight. Again girls, his belly has not been the same since pelvis rads and all doctors involved say he is recovering the way they envisioned, by the new year he should feel a bit better.

The toe thing seemed strange, but for a second since the entire disease is strange!! I knew someone had to have this go on and we will follow up since it could get to be an issue. I thank you girls for the advice and we are keeping 'AFOOT' of it all....ROTFL!!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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