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I have to agree w/ everyone else. I close my eyes and fight the urge to open them until I am out of whatever scan I am enduring. One tip I have for those having whole body PET scans is to ask for a pillow to place under your arms (your arms have to be above your head). The first PET scan all I could think of was the terrible ache in my shoulders. The following PET scan was much easier w/ the addition of 1 Pillow, 1 Percocet, and 1 Ativan (Pls don't drive yourself home). Hope this helps someone. I certainly have used hundreds of tips from you all and always welcome any tidbit you can think of to share. I do plan on using the self-hypnosis next time.
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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