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Chelee · 11-14-2007, 03:52 PM

This board is so vauable because it IS accessible to the newly DX that are scared out of their minds and looking for help, support, & answers. As I mentioned in a earlier post I can't imagine what would of happened to me had I not ran across the Her2 support board. There were other bc boards...but this one meant more to me because it was for her2 women. I *wasn't* getting answers at my cancer center & it was making things even more of a nightmare for me until I found this board...thank God.

So if people can access posts from this board that does not bother me. I started off being "Chelee" and have stuck to that name. (Again, not my real name.) But I do like it when people use what appears to be a real name verses as you said Andi...something like "NRTYpphy" I hope no one takes offense to that because my intentions are good.

I rather they choose a name...even if its not their real name. (But you should stick to that same name and not change it.) If I wouldn't of had SO MANY problems at the cancer center I'm going to I would of used my real name. However people I correspond via my PM's or email...I do tell them my REAL name with no problem.

Chelee

11-14-2007, 03:52 PM	#32
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	This board is so vauable because it IS accessible to the newly DX that are scared out of their minds and looking for help, support, & answers. As I mentioned in a earlier post I can't imagine what would of happened to me had I not ran across the Her2 support board. There were other bc boards...but this one meant more to me because it was for her2 women. I wasn't getting answers at my cancer center & it was making things even more of a nightmare for me until I found this board...thank God. So if people can access posts from this board that does not bother me. I started off being "Chelee" and have stuck to that name. (Again, not my real name.) But I do like it when people use what appears to be a real name verses as you said Andi...something like "NRTYpphy" I hope no one takes offense to that because my intentions are good. I rather they choose a name...even if its not their real name. (But you should stick to that same name and not change it.) If I wouldn't of had SO MANY problems at the cancer center I'm going to I would of used my real name. However people I correspond via my PM's or email...I do tell them my REAL name with no problem. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.