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michka · 11-07-2007, 11:09 AM

I started Tykerb yesterday. I live in Paris, France. Tykerb is not available yet except through special trials for women with a metastasis.
My onc. thinks that Tykerb will be used like Herceptine within a year or two and got it for me since he thinks that it protects the brain better. Moreover, he thinks, like me, that the Taxol/Herceptine treatment half worked. So I will take Tykerb for a few months. If I can support it...
I started with 2 pills a day. I will go slowly to 5.
I AM SO THIRSTY. I was already drinking like a nut before, but now, even drinking doesn't seem to make me feel better. Did you have that problem? I also have some stomach aches. But so far, it is OK.
Michka

11-07-2007, 11:09 AM	#1
michka Senior Member Join Date: Feb 2007 Location: Paris, France Posts: 858	Starting Tykerb I started Tykerb yesterday. I live in Paris, France. Tykerb is not available yet except through special trials for women with a metastasis. My onc. thinks that Tykerb will be used like Herceptine within a year or two and got it for me since he thinks that it protects the brain better. Moreover, he thinks, like me, that the Taxol/Herceptine treatment half worked. So I will take Tykerb for a few months. If I can support it... I started with 2 pills a day. I will go slowly to 5. I AM SO THIRSTY. I was already drinking like a nut before, but now, even drinking doesn't seem to make me feel better. Did you have that problem? I also have some stomach aches. But so far, it is OK. Michka __________________ 08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20% FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex 12.2010 Mets to liver,Herceptin+Tykerb 03.2011 Liver resection ER+70% PR- 04.2011 Herceptin+Navelbine+750mg Tykerb 06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum 11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin 02.2012 Mets to lungs, nodes, liver 04.2012 TDM1, Ned in 07.2012 04.2015 Stop TDM1/Kadcyla, still Ned, liver problems 04.2016 Liver mets. Back on Kadcyla 08.2016 Kadcyla stopped working. mets to liver lungs bones 09.2016 Biopsy to liver. no more HER2, still ER+ 09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife 01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere 02.2017 30 micro mets to brain breathing getting worse and worse 04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven 06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms