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StephN · 11-02-2007, 11:48 AM

Hi Verna -
Sorry about your problem, but it plagues many of us.

I have had some ongoing problems with nasal sinuses even being NED and off chemo for over 5 years.
After I finished chemos in 2002 I went to my ENT who cauterized my nasal passage on the right side (that did not hold long). There was a constant sore about the size of a pencil eraser that would not stay scabbed over and heal. He also ordered at CT of my sinuses to check for infection and anything else. CT did not show anything except the nasal sinus on right side had a larger cavity than the left.

I used not only the AYR gel that Chrisy mentioned, but antibiotic salve as well. Sometimes had to go around the house with a tissue twisted up that right side of my nose to stanch bleeding.

While on the taxanes (I had both) my nose would bleed just sitting quietly such as at the dinner table, which was rather unnerving and unpleasant. Did not take even the slightest activity to bring on the flow!

11-02-2007, 11:48 AM	#9
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Hi Verna - Sorry about your problem, but it plagues many of us. I have had some ongoing problems with nasal sinuses even being NED and off chemo for over 5 years. After I finished chemos in 2002 I went to my ENT who cauterized my nasal passage on the right side (that did not hold long). There was a constant sore about the size of a pencil eraser that would not stay scabbed over and heal. He also ordered at CT of my sinuses to check for infection and anything else. CT did not show anything except the nasal sinus on right side had a larger cavity than the left. I used not only the AYR gel that Chrisy mentioned, but antibiotic salve as well. Sometimes had to go around the house with a tissue twisted up that right side of my nose to stanch bleeding. While on the taxanes (I had both) my nose would bleed just sitting quietly such as at the dinner table, which was rather unnerving and unpleasant. Did not take even the slightest activity to bring on the flow! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.