HER2 Support Group Forums - View Single Post - Strange symptoms

StephN · 10-28-2007, 04:09 PM

Thanks All for your nice thoughts and prayers. Appreciate them.

Wanted to clear up a couple of questions.

1. The venous pattern (like webbing) is NOT in my radiated area. It is fairly uniform on both sides of my midrif area. Now hove a few NEW veins showing on my back under left shoulder blade.

2. I do not wear tight bras or use underwires. Nothing else constricting.

3. No pulled muscles from exercise or overuse of that area - like I am doing hard pilates every day! (LOL)

This condition is so unusual that NONE of my several doctors have ever seen something like this. I feel like a mutant!

10-28-2007, 04:09 PM	#11
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	More info Thanks All for your nice thoughts and prayers. Appreciate them. Wanted to clear up a couple of questions. 1. The venous pattern (like webbing) is NOT in my radiated area. It is fairly uniform on both sides of my midrif area. Now hove a few NEW veins showing on my back under left shoulder blade. 2. I do not wear tight bras or use underwires. Nothing else constricting. 3. No pulled muscles from exercise or overuse of that area - like I am doing hard pilates every day! (LOL) This condition is so unusual that NONE of my several doctors have ever seen something like this. I feel like a mutant! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.