Hi, I just saw your post and it may not be relevant but I wanted to mention I met a lady here on the her2 site from Scotland about a year ago. She had progression to her bone mets while on heceptin and was very afraid as she could'bt get tykerb in Scotland.
I researched a bit for her and made a few calls to set up an onc here (Ireland) and thankfully she received the tykerb along with some excellent brain surgery.
We're a lot closer to you here than the States but seem to have easier access to all the new drugs. I hope you find something to help quickly but just thought it worth a mention.
Bty, the lady I refer to moved her family here to live as she has young children and the last time I called she was still in treatment but doing well and happy in her new home.
My best wishes to you
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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