View Single Post
Old 10-08-2007, 11:36 AM   #12
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Maybe Joe can attach this thread to the "side effects" one??

Or create a "part B" to that other thread.
Been on Vitamin H for close to 6 years now. My weight stabilized at about a 10 pound gain after my last round of chemos with Herceptin 5 years ago. Can't seem to budge that 10 pounds! Was always on the skinny side.

I am on the 3-week dose.
My infusion is scheduled between 11:30 and 12 noon each time. This timing is on PURPOSE so I can eat DURING my infusion. My cancer center has very good "patient lunches" and I take advantage of that perk. I get my bottle of Athena water, my little can of cranapple juice and have my lunch. That staves off "the munchies."

My infusion is also given over 45 minutes. I find that I feel better with that timing vs. 1/2 hour. Not much dif time-wise, but a big dif feeling-wise.

Try eating a moderate amount during the infusion and see if it makes a difference. I still crave chocolate - but don't allow myself anything but organic and 75 to 90% cacao - not the sweet kind.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote