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Old 09-24-2007, 12:08 PM   #1
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
~If Ever We Are Too Sick To Visit The Board...

When I went away I came back to postings about where I was and believe me it touched my heart....but I was fortunate enough to be okay, just busy.

Well, Nicola is a fine example of how we get to know & love someone and when they are not here how it affects us. Since the end of August I have wondered what is going on with our dear Nicola. Luckily for us Kareng gained contact with her husband for an update. This has happened before with other members too who have had setbacks or depression. I will never forget how I missed Joy's posts and I wondered too, where is my girl??

MY MAIN REASON FOR THIS POST:
There are times when setbacks can keep us from the site and at the moment many of our members are in this category. If we are too fatigued or depressed or too sick to keep contact...

Could we assign someone in our lives to get on the site just to let us know?? Could you find someone you love to keep us posted on your journey?? We do not need a detailed update, just let us know you are in need of some special prayers. Or in Nicola's case with her liver numbers going up maybe we would have some form of an answer for the family....or maybe a link....or a question for the doctor.

Let's face it, this disease is bound to keep us away at times, if it was up to Ed writing to this group, you would have not heard from him for about 2 1/2 months now. It is alright to be away for a while girls, but when we are too ill I would like to see someone write or call someone. Maybe the one we love could get assigned ONE person to contact and they could keep us posted with our reasons. I know that cancer is a private disease and many may be reluctant to come here when we are depressed or very sick, but after all, that is what we are here for.

I LOVE YOU ALL AND HOPE THAT THE IS SOMETHING WE ALL COULD ARRANGE!!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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