HER2 Support Group Forums - View Single Post

Believe51 · 09-24-2007, 07:23 AM

Since Ed has Tykerb/Xeloda he has mentioned the lack of taste. His previous chemotherapy did effect his tastebuds, but differently. Right now he is having trouble 'tasting' anything. This makes it harder now than before with his eating difficulties. Right now he cannot afford to lose anymore weight, so he does have to choke down things that do not taste and texture seems like it has changed to which is making it even more 'gagable'. Sorry I can not help more.

I hope that anyone with an answer can help, but in the mean time I will be exploring this post for us. Hopefully with good results. In the mean time I am sucking down a caramel latte in your honor my sweet friend. Keep the faith. And how did the date go??

Thankful that you are keeping us posted>>Believe51

09-24-2007, 07:23 AM	#7
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Hello Joy Since Ed has Tykerb/Xeloda he has mentioned the lack of taste. His previous chemotherapy did effect his tastebuds, but differently. Right now he is having trouble 'tasting' anything. This makes it harder now than before with his eating difficulties. Right now he cannot afford to lose anymore weight, so he does have to choke down things that do not taste and texture seems like it has changed to which is making it even more 'gagable'. Sorry I can not help more. I hope that anyone with an answer can help, but in the mean time I will be exploring this post for us. Hopefully with good results. In the mean time I am sucking down a caramel latte in your honor my sweet friend. Keep the faith. And how did the date go?? Thankful that you are keeping us posted>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!