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chrisy · 09-18-2007, 09:10 PM

Hi Sherry,

Just when you think you've got a chronic condition, they start treating you like you're cured! Maybe that's a good omen.

I was on Herceptin for over 2 years, with never a question - although the insurance co did redo the "authorization" once a year. I was always told that as Stage IV I would be on it indefinitely, and I think that is standard for that stage. Many on this forum, as you know, have been on Vit H for a long time.

That said, remember that Gina has been on AND off Herceptin for a lot of years, but she monitors her serum Her2 level closely. She would also agree this is not standard, but has worked in her case.

I think it comes down to what you are comfortable with - but I think insurance would not be an issue for you.

They love to keep you guessing, huh!

Take care
chris

09-18-2007, 09:10 PM	#5
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Hi Sherry, Just when you think you've got a chronic condition, they start treating you like you're cured! Maybe that's a good omen. I was on Herceptin for over 2 years, with never a question - although the insurance co did redo the "authorization" once a year. I was always told that as Stage IV I would be on it indefinitely, and I think that is standard for that stage. Many on this forum, as you know, have been on Vit H for a long time. That said, remember that Gina has been on AND off Herceptin for a lot of years, but she monitors her serum Her2 level closely. She would also agree this is not standard, but has worked in her case. I think it comes down to what you are comfortable with - but I think insurance would not be an issue for you. They love to keep you guessing, huh! Take care chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure