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chrisy · 07-30-2007, 05:31 PM

Dear Nicola
I was thinking of you a couple weeks ago when I was walking in the Relay for life. I'm so sorry you are having to go through this (actually, I am really pissed!) Thank goodness you forced the followup MRI.

I haven't any direct experience, but as you know many ladies here are doing very well after brain mets, and many have returned to NED with treatment. This can happen for you, too.
I think that, although the waiting is hard, it takes some time for the lesions to resolve and it is difficult to distinguish active tumor from necrotic. So although it's hard to wait, you will get better information from the MRI.

I think this is paper Steph was referring to. There is also a lot of other info if you go to the home page then metastasis.

http://www.her2support.org/paper.pdf

Take care
Much love
Chris

07-30-2007, 05:31 PM	#13
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Dear Nicola I was thinking of you a couple weeks ago when I was walking in the Relay for life. I'm so sorry you are having to go through this (actually, I am really pissed!) Thank goodness you forced the followup MRI. I haven't any direct experience, but as you know many ladies here are doing very well after brain mets, and many have returned to NED with treatment. This can happen for you, too. I think that, although the waiting is hard, it takes some time for the lesions to resolve and it is difficult to distinguish active tumor from necrotic. So although it's hard to wait, you will get better information from the MRI. I think this is paper Steph was referring to. There is also a lot of other info if you go to the home page then metastasis. http://www.her2support.org/paper.pdf Take care Much love Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure