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Nicola-
I was so sorry to read of your post, as I was experiencing the same symptoms - WBR was the only option for my as i had too many for gamma knife or stereotactic. I was put on the decadron, although I only need 10 and not 15 treatments - I'm not sure why...pain disappeared right away - hair is falling out, but I was told there would be negligible cognitive brain loss - always a big concern for me as I am a partner at a law firm. The onc believes the radiation issues are much more minor than the lungs (for me) or liver (for you), so I hope they can get that under control.
I'm taking it day by day now, and will see how things go after this week's endl of radiation. I'm goiing to track down Steph's article she referenced - I really do want to learn some more about this...
I hope you feel better too...
Kind regards,
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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