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Joy · 07-30-2007, 06:29 AM

I really appreciate your post Nicola. I thought it was so expressive in a very clear way and I can FEEL what you were saying-what a gift you have-especially after chemo brain and WBR-you must have a SUPERBRAIN!

Please take the words of the others seriously as they have so much wisdom and there are success stories.

Also, and I may have missed something becaue I know I don't have a superbrain, but you didn't mention Xeloda, did you? Either Xeloda and herceptin or Xeloda and the Tykerb again may help so much because there is evidence that both cross the BBB and xeloda has great activity in the liver for many, of course not all, but I just thought it might be a dialogue for you to have with the onc. I hope your visit today provides you with peace and strategy.

AND be sure to pamper yourself in your favorite ways, it will help bring some calm to you.

So much love to you!

07-30-2007, 06:29 AM	#9
Joy Senior Member Join Date: Jul 2005 Location: Ft. Collins, Colorado Posts: 546	thinking of you I really appreciate your post Nicola. I thought it was so expressive in a very clear way and I can FEEL what you were saying-what a gift you have-especially after chemo brain and WBR-you must have a SUPERBRAIN! Please take the words of the others seriously as they have so much wisdom and there are success stories. Also, and I may have missed something becaue I know I don't have a superbrain, but you didn't mention Xeloda, did you? Either Xeloda and herceptin or Xeloda and the Tykerb again may help so much because there is evidence that both cross the BBB and xeloda has great activity in the liver for many, of course not all, but I just thought it might be a dialogue for you to have with the onc. I hope your visit today provides you with peace and strategy. AND be sure to pamper yourself in your favorite ways, it will help bring some calm to you. So much love to you! __________________ with love and gratitude, joy dx stage I 2/2000er/pr+; her- per IHClumpectomy4 rounds A/C30 radstamoxifendx stage 4 5/2002huge mets to livertiny mets to lungsstopped tamoxifen5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin 2/03 stopped chemo femara w/herceptinzolodex04 switched to aromasin w/herceptin05 high estrogen tx11/05taxol/carbo7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin5/07tykerb/xeloda great response4/08 progression in liver; ooph/ faslodex /herceptin 6/08 began Herceptin DM-1 9/08 progression