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Dear Nicola,
you have been through so much and you have so much going on, small wonder you feel like the world is spinning with you!
I reassure you it is very coherent what you wrote! I do not have experience with the issues that you are facing but I have a friend whose large (grapefruit size!) brain mets were very successfully treated with chemo, WBR and Gamma Knife. He is basically back to NED. (His primary was lung).
I'm sure everyone else will tell you this: Tykerb may be a good option for you since it is a small molecule that crosses the blood brain barrier.
All I can offer is sending some positive healing energy towards you, call it prayers or love,
Odette
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May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment
'One does not get to choose one's adventures'
I'm experimenting with my diet, using green tea, flax seed curry and olive oil
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