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Believe51 · 07-20-2007, 09:58 AM

I posted that question, "Has anyone heard from her since she stopped treatment. I too have been wondering about her and her family. That has to be the hardest thing to go through and I dread even saying the words!!

That is a good idea to ask Joe, I too think of her and her loving family and feel they should know what she means to us. Also, if they need anything they should be able to contact anyone here.

I cannot imagine what it must feel like to tell us that "I am stopping treatment due to progression'. But I feel YES to the family should be able to contact us and YES we should be able to send our best wishes. I know that PRIVACY might be an issue, but maybe Joe could set up a special section on the site like you suggested to let us have voices for the people who we have grown to call family.

Thank you Donna for the nice idea. We need to have that voice for our own special reasons, whether it be to ask if help is needed, to express our devotion to that individual, or to even mourn with their families. I am not so sure that all of the families affected with breast cancer even know what they mean to US!!!

Waiting For A Miracle...and getting ready to demand one!!>>Believe51

07-20-2007, 09:58 AM	#8
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Me Too!!! I posted that question, "Has anyone heard from her since she stopped treatment. I too have been wondering about her and her family. That has to be the hardest thing to go through and I dread even saying the words!! That is a good idea to ask Joe, I too think of her and her loving family and feel they should know what she means to us. Also, if they need anything they should be able to contact anyone here. I cannot imagine what it must feel like to tell us that "I am stopping treatment due to progression'. But I feel YES to the family should be able to contact us and YES we should be able to send our best wishes. I know that PRIVACY might be an issue, but maybe Joe could set up a special section on the site like you suggested to let us have voices for the people who we have grown to call family. Thank you Donna for the nice idea. We need to have that voice for our own special reasons, whether it be to ask if help is needed, to express our devotion to that individual, or to even mourn with their families. I am not so sure that all of the families affected with breast cancer even know what they mean to US!!! Waiting For A Miracle...and getting ready to demand one!!>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!