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Old 07-17-2007, 02:11 PM   #2
Lolly
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Join Date: Aug 2001
Location: Oregon
Posts: 1,756
Stephanie,

I had the same problem and when I contacted my insurance provider was told the problem is with Medicare's billing code for Tykerb, and the insurance providers have no control over how the government codes Tykerb.

Xeloda was a reasonable co-pay, but Tykerb is viewed as a "specialty drug" which puts it into a different class. I was advised to take it up with Medicare, which I haven't had time to do yet. However, the light at the end of the tunnel is that after 3 months of high, high co-pay's I finally reached my maximum annual out-of-pocket amount and it's now appx. $170 a month.

Thanks to Christine's heads up, I just participated in GSK's teleconference regarding the news release on food/Tykerb interaction(GSK's advice is follow the FDA approved use, which is "on an empty stomach"), and I asked the GSK moderator about this issue of Medicare/Tykerb. She said GSK is well aware of the difficulty for patients, although GSK can't effect a change in Medicare's policy. They advise patients who face a high co-pay to get in touch with:

"TykerbCares"
http://www.tykerb.com/tykerbcares.html

and they will guide you through the Patient Assistance process for financial assistance with the cost.

Hope this helps, let me know if I need to clarify.

<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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