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Old 06-27-2007, 06:43 AM   #7
julierene
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Join Date: Dec 2005
Location: Illinois
Posts: 327
i had the oomphrectomy and i had er- idc and er+ dcis. i decided to go aggressive, and it didn't really matter. i have had dryness, and i feel almost allergic to even KY, so it has been difficult to say i am happy with my decision. for being 32 and still sexually active, it's frustrating. also, going through that change - you might want to read up on menopause emotional symptoms. i didn't have my uterus removed because i didn't have much of that kind of problem in my family history, AND because i felt like i shouldn't remove something without really good reason. with my age, they also didn't recommend the hysterectomy. for me, i was more worried about the estrogen, but they have meds for that. so i don't know what to tell ya there. if you are worried about ovarian cancer like i was, then maybe that would help you decide. but without ovarian cancer in the family, what's the real point?

there are other genetic factors out there for breast cancer families. if you have just a few other cancers spread around in the family, it could be a completely different gene.
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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