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Lolly · 06-25-2007, 06:05 PM

Harald, like Chris I take my Tykerb(5 tabs) in the morning when I first wake up, then go back to bed for an hour. I do have fatigue; I have to pace myself on my "tired days" and not overdo it. I just have moderate diarreah which is controlled by 1-2 doses of Immodium a week. Usually just need one dose, but that may be because I'm also on Abraxane IV which requires IV Zofran for naseau which causes constipation, so it seems the 2 balance each other out!
Glad you and your lovely wife were able to successfully fight for Tykerb, and am keeping my fingers crossed for a good response!

<3 Lolly

06-25-2007, 06:05 PM	#8
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	Harald, like Chris I take my Tykerb(5 tabs) in the morning when I first wake up, then go back to bed for an hour. I do have fatigue; I have to pace myself on my "tired days" and not overdo it. I just have moderate diarreah which is controlled by 1-2 doses of Immodium a week. Usually just need one dose, but that may be because I'm also on Abraxane IV which requires IV Zofran for naseau which causes constipation, so it seems the 2 balance each other out! Glad you and your lovely wife were able to successfully fight for Tykerb, and am keeping my fingers crossed for a good response! <3 Lolly __________________ Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation. Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.