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Harald-
I'm glad she has started tykerb - I take 5 pills a day before I go to bed, and am still dealing with the diarhhea issues - I take the immod ad but I don't think it helps much.
We just discovered the mets to the bone (had it to lungs) and I'm in the middle of radiation to my left hip - it already feels better.
I have the shortness of breath, but haven't gone to oxygen yet...I''m on abraxane now, so we'll see what happens.
Good luck with tykerb,
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Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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