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Old 06-25-2007, 03:17 AM   #8
Kathy S in Tokyo
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Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
I've been on weekly Herceptin since March and have managed to avoid any aches and pains. Taxol was added to the regime last Tuesday (6 days ago) though and I've felt fatigued and generally yucky since Thursday. This morning I almost called an ambulance because of severe chest pains (6 days after intial infusion) but decided that I'd lie down until I could actually talk and then reassess things as I really can't afford a trip to ER in addition to treatments. After almost an hour of the pain, it calmed down and I decided to sleep all day until work this afternoon and tell my onco. about it tomorrow.

So far, this has been the first pain in my cancer experience so it was a little disturbing. I don't know if it's from the Taxol, a panic attack (worrying about when I have to stop treatments because I just won't be able to get myself to the hospital and back on the trains or to continue to pay for my 30percent share of the costs.) or pleurisy from the cold that gave me the cough that warranted kicking butt with Taxol to shrink the lung mets or possibly the lung mets themselves protesting the Taxol? Worst case scenario? A heart attack? I'm turning into such a wimp these days.

Has anyone else had chest pains like this?

I'm thankful that the pain is mostly gone, just a little soreness around my sternum, and that I'll be able to go talk with my oncolgist tomorrow.

I feel like such a wimp now :-( .
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Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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