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Andrea Barnett Budin · 06-23-2007, 02:57 PM

Barbara, You're amazing! Working and all you've been through. Taking time off for brain surgery... Hope you're doing a lot of deep breathing exercises.

You can check my signature for my story. I initially had a MUGA, then ECHOs ev 6 mnths. Last yr Pegram graduated me to annually at this point in my career as a Survivor. My NY onc/supplement guru has me on Co Enzyme Q10 150 -- twice a day. Has added Perfusia (arginine, but that's the one he prefers, best quality I suppose) 380 -- just once a day, though the bottle says take lots more. He swears THAT 1 Perfusia a day will boost your ECHO right off! I take Omega 3s EPA 800 + DHA 400. My doc wants me to take NEUROMINS instead. I'm thinking about it. B6 (P5P50 activated B-6, which doc says is best). Grapeseed Extract 150, Carnithane 500, Magnesium 200 and Potassium 545 twice a day. ALL FOR HEART HEALTH. I get most of my vitamins from Vitacost -- good quality and reasonably priced. A bargain isn't always a bargain when it comes of vitamins, you know. Hope this helps, as I know only too well how vital staying on Herceptin is. YOU CAN DO IT!

I wish you WELL. I am sending loving, healing energy to you right this moment. Let us know how you do. My money is on YOU, Barbara. You sound like you have it together, besides the sad moments, which come crashing down on us all from time to time. We just have to walk right through the fear and uncertainty and move over to the positive side. Stay strong in Spirit and in health. LOVE, ANDI

Hope you

06-23-2007, 02:57 PM	#10
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Better Echo Scores Barbara, You're amazing! Working and all you've been through. Taking time off for brain surgery... Hope you're doing a lot of deep breathing exercises. You can check my signature for my story. I initially had a MUGA, then ECHOs ev 6 mnths. Last yr Pegram graduated me to annually at this point in my career as a Survivor. My NY onc/supplement guru has me on Co Enzyme Q10 150 -- twice a day. Has added Perfusia (arginine, but that's the one he prefers, best quality I suppose) 380 -- just once a day, though the bottle says take lots more. He swears THAT 1 Perfusia a day will boost your ECHO right off! I take Omega 3s EPA 800 + DHA 400. My doc wants me to take NEUROMINS instead. I'm thinking about it. B6 (P5P50 activated B-6, which doc says is best). Grapeseed Extract 150, Carnithane 500, Magnesium 200 and Potassium 545 twice a day. ALL FOR HEART HEALTH. I get most of my vitamins from Vitacost -- good quality and reasonably priced. A bargain isn't always a bargain when it comes of vitamins, you know. Hope this helps, as I know only too well how vital staying on Herceptin is. YOU CAN DO IT! I wish you WELL. I am sending loving, healing energy to you right this moment. Let us know how you do. My money is on YOU, Barbara. You sound like you have it together, besides the sad moments, which come crashing down on us all from time to time. We just have to walk right through the fear and uncertainty and move over to the positive side. Stay strong in Spirit and in health. LOVE, ANDI Hope you __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...