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Old 06-23-2007, 10:11 AM   #15
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Thumbs up Wonderful "yous" / Y'all...

I love this network of extraordinary women, who've been through hell and back more than once and totally get it. Your support and caring is invaluable, irreplacable. It's so wonderful that we have each other. I read all yr messgs and ingested ea suggestion and perspective. Surely stress is overwhelming me.

After living w/my husb's moaning in agony for 2 wks 24/7, I was a bit of a mess. Then he got up frm 2 wks in bed, not eating or drinking due to the nausea assoc w/Shingles, chills, feverish feeling and nerve ending pain around his torso and down frnt & bck & in to the testicle -- and drve to Ft/ L & played 5 hrs of glf iunder the Fla June sun, called sev X to say I'M FINE, his famous in denial words alw. He walked in the dr and imm sd I DON'T FEEL GOOD. Take yr bld sgr and bld prssr. Sgr gd. Prssr 60 over 40! He was going to lie dwn but went to walk the dogs first. He bent and as he std up the rm was spinning. He fell bck and down. As it turns out break 3 metataral bones in his ft. Emerg rm for 12 hrs. Did brain CT, brain MRI. Neuro consult. Had bn on pn meds and Lyrica for nerve pain which messes w/yr CNS, causes dizziness and precipitious drp in bld prss. Tkn off Lyrica and off Hytrin alpha blckr (which as it turns out also shrinks enlarged prostate and aids in urine flw, we now know). Home F's Day, rght to bed. Urine retention gt so bd Tues that we ran to urol who waited in his office for us at 5: and inserted cath. Put bck on Hytrin to shrnk prost. and imprv urine flw. Knees buckled and fell bckw at 10:30 that night. I sw this hppn and ran (not even stpping to rch for my glsses). He fell agnst a large chair in our bdrm. I cradled his head. He moaned and started to drift away, turning his hd. STAY W/ME PAUL. STAY W/ME. I'M CALLING AN AMBUL. I got to the phone a step away, w/o glasses and felt for 9 + 1 + 1. I need an ambul. 2 days in hosp agn. Dear God. So since then ev tm P moves to stnd or sit up or bend, I rmnd hm SLOWLY. I've becme aware of hw we automatically move to go where our mind thinks to go without realizing it and how he now has to brng this into hs conscsnss all day lng. SO YES, I AM STRESSED. And surely the pain in my neck and shoulders, and back of hd are there. I've bn aware and consciously RELAXED those muscles and talked mys dwn for the lst wk. I knw Dr. Sarno says the cycle is PAIN, FEAR, BACK TO PAIN. The more pain, the worse the fear, which tenses the muscles and impinges on nerve endings and creates more pain. And then more fear. I meditated in the hosp to stp that cycle. Alert to its signs. Lghter is great I agree. But I am groggy, beyond tired phys and emo. I hv kept notes trying to rem and report what happ on wht day after what pill was stppd, restarted, etc Symp at ea pt. It is w/Paul's list of meds and dosages tkn daily -- WHICH WE MUST ALL HAVE FOR OURSELVES AND THOSE WE LOVE AND LIVE W/ AT ALL TIMES -- BTW. I never go out w/o my drvrs' lic and my insur card and this list of pills.

Paul has becme so wk, he lks 20 yrs older, skinny and nt in a gd way, walks w/the heel of the brkn ft and the gd ft and the imbalance. I am sudd lving w/an invalid. HE WILL BE FINE. But I have never bn so scared, not ev whn I ws dx. I had the glancing thought -- it's eas to b the patient than the caregiver. Then I tossed that away w/images of me pushing a drooling husb in a wheelch and replaced such ideas w/ I AM NOT GOING TO ALLOW THIS CRISIS TO MAKE ME SICK. I WILL STAY WELL AND HEALTHY. PAUL WILL BE BACK TO HMSELF. I WILL SEE THAT HE GETS THERE. I now collect and drag the garb to curbside, walk the dgs, serve fd to get into hm all day, hover, can't sleep. I became Brunhilde, a witch demnding he drnk and HYDRATE. You don't und when you fl so sick you can't eat or drnk. I UNDERSTAND -- I'VE BN ON CHEMO TWICE. At least you have hair! And eyebr and eyelashes. I flt sick most of the time and I forced mys to eat a little something and keep flushing out the toxins -- for my own health!

BLESS YOU LADIES -- SHEILA, JEAN, ADRIANA, CAROLINE, FLORI (?EGBOK), PATRICIA, CHRISY, SUSAN.... I FEEL SO BLESSED TO KNOW EACH AND EVERY ONE OF YOU -- MY BUDDIES, MY SWEET AND SASSY SOUL SISTERS. Yes, I go bonkers before flying, but the end of July sms a hundred yrs aw. I am liv through this ordeal in the one day at a time mode, which conjures up my own traumatic strggle for surv. Sme days I went 1 hr at a tm. I was pre-mammog and didn't ev ntce, though I "knw" it was apprching, focused on P. INSCANITY has norm set in wks before (I go on the 28th) but I haven't had tme to dwll there. I must fght the light-headed shaky feeling because I am nded nw to gv back a little of what P has gven me esp ovr the last 11 yrs. I am here in lrge part because of his love and doing it all w/o complaint. And of course, as we all knw, we Survivors nvr jst mv on. It's on ongoing proc once dx w/ca. Vigilant. Attuned to any changes in our body. Working at not freaking out, obsessing, but taking care of our temple -- our body and mind (physical/psychological/spiritual). It's a full time challenging and diff jb. You all knw I feel positive abt me -- and quit naturally about Paul. I kept praying while sitting w/him at the hosp -- GOD STAY W/HIM. GUARDIAN ANGELS STAY CLOSE. Keep him well. I am obsessed w/healing thoughts of P and my role in standing guard over him. In the hosp I was back and forth to the nurse's sta, mov thngs alng, checking, double checking, getting him what he needed. I went dwn to the cafeter to replce the "most vile turkey sandwich every eaten" etc. I hve never bn so active. Drving to get the walker, urinal and shwr chair, walk the pups, bck to the hosp. Emailing friends who are concerned and lve my nwsy sys of gett bck to all of thm w/thanks and love -- in mass emails. Busy, busy. Cardiol, neurol, urol, orthoped, internist. MRA, Tilt Table Test, bld work, urine cultures... It's bn crazy. No tme to relax. Not now, but that's ok, I go to Yosemite in my hd frm tm to tm in medi and feel the bty of the Univ and all the love coming to Boca.

Sending hugs to each of you. There are lessons within this post (and all yr posts abve -- for ea of us, to help enrich our lives... LOVE YA, ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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