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Old 06-21-2007, 12:28 AM   #15
Kathy S in Tokyo
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Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
Sheila, it looks like were on the same regimen now. I started Taxol two days ago in addition to my weekly Herceptin. I think I'll go get a very very short haircut to minimize care and clean up in 12 to 14 days, when I'm told to expect to start shedding.

Two days after the Taxol I'm feeling a little yucky but it may be due to the heat and humidity in Tokyo. Blech. No hair may be a good thing this summer. I can't imagine wearing any of the wigs I accumulated last time I lost my hair (last year) in this heat so I'll probably be doing bandannas and hats except when I have to teach three afternoons a week.

Good luck in your hunt for hair.
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Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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