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I read your story
Dear Robin:
It's unvelievable that nothing could detect your cancer. A friend of mine has had for about 8 months nipple discharge and a bump on the nipple area, she had an ultrasound and the needle biopsy, (I believe you had the needle biopsy done, right?); she was diagnosed as having fibrosis of the breast, but I doubt it very much, I have read and have witnessed so many cases that I do not trust these diagnostic tools anymore. I'm not sure if I should say something to my friend; who in the first place went to the doctor at me insisting, she's the type that believes that the less one knows, nothing bad can happen.
She' sbeen scheduled to go back for a check up in three months; she has about 1 1/2 months until the appointment, so maybe I will wait, I really do not want to intrude in her affairs. Again, she does not want to know anything; if is going to be bad news. SHe's very apprehensive even about small things.
I'm honestly very happy for you. What a shock this must have been for you and your husband, considering you both are in the medical field.
I'm also glad you continue being a member of this site, even though you now are considered "cancer free". CONGRATULATIONS on your 5th year mark!
With much love,
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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