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Lolly · 05-10-2007, 12:13 PM

Hi Maria,
I don't think you should worry too much, as you did receive the "Gold Standard" in regards to early stage Her2+. Many of us who've recurred didn't receive Herceptin for early stage as it wasn't approved for that use when we were diagnosed, so unfortunately had to wait for recurrence...
If you want to be proactive in keeping recurrence on the back burner of your mind, keep an eye on the Her2 Vaccine Trials, some of them are moving into later phases and may allow early stage volunteers to enroll.
Hope this helps!

<3 Lolly

05-10-2007, 12:13 PM	#6
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	Hi Maria, I don't think you should worry too much, as you did receive the "Gold Standard" in regards to early stage Her2+. Many of us who've recurred didn't receive Herceptin for early stage as it wasn't approved for that use when we were diagnosed, so unfortunately had to wait for recurrence... If you want to be proactive in keeping recurrence on the back burner of your mind, keep an eye on the Her2 Vaccine Trials, some of them are moving into later phases and may allow early stage volunteers to enroll. Hope this helps! <3 Lolly __________________ Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation. Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.